Friday, July 30, 2010
His father had asked me to thank everybody who had cared and loved Ibrahim.
I personally wish to express my gratitude and thanks on behalf of Encik Mazlan's family and our late Ibrahim, to all of you who had offered prayers, thoughts, care and kind contributions for Ibrahim in his hours of need.
Ibrahim had touched our hearts as we did his.
Ibrahim, rest in peace. We won't be in the way of Allah's plan for you. You had left us early but we won't forget you. Thank you for making us humble and collectively stronger in compassion and deeds. Please run or ride with us from heaven above, making us safe for always.
Our deepest condolence to Encik Mazlan and his family.
Wednesday, July 28, 2010
The next treatments would be another full session of chemos to be administered as soon as possible to arrest the growth of the cancerous white blood cells.
On our side we are making Ibrahim as happy and comfortable as possible. May Senn is currently in Kuala Trengganu for office work. She will visit Ibrahim to cheer him up with pizzas and stories of our runs for him. Kooky and Paul Lee participated in the annual Port Dickson International Triathlete Race last weekend. Both had pledged to give their finishing medals to Ibrahim. How nice of them. This should certainly cheer Ibrahim up.
PCM members will ride for Ibrahim this Friday night in Putrajaya starting at the Palace of Justice at 9.00pm. Come and join us for this ride and contribute a small token for Ibrahim. This is the least we could do for the month of Ramadan.
For more information on this ride please call me at 013-3948839 for details.
Sunday, July 25, 2010
Friday, July 23, 2010
Fast forward yesterday. I was just starting to do my training run around my block when Tina, whom I had not met since the last time I helped in the episode described, came up from behind and said "Hello Allen, long time no see. I was trying to catch up with you but somehow in wain." we exchained pleasantries and I told her about our Ride for Ibrahim Do with our PCM gang next friday night.
Tina responded immediately and said she will ride PCM next week and would like to give some nutrietious extracts for Ibrahim. She is a reseller for exfuse products. I welcomed her contributions and made arrangements to receive FOUR bottles of SEVEN+ to be couriered imediately to Ibrahim in HKT.
I Googled exfuse.com to learn about SEVEN+ extracts. I won't try to impress you what the extracts are. Please google for it yourself. Suffice to say that it is God sent remedy for what everybody is looking out for. Certainly it is pricy enough to be in the Ivy leaque's choice supplement. Thanks Tina for the four bottles and one for me as well.
Our super logistician Kooky dispatched the extracts to KT at 4 pm today. I went shopping with my care giver today and bought a proper juicer and some glass cups and plates for Ibrahim. Ibrahim should not be using any plastic things from now. We are starting to looking into the smaller details to propel Ibrahim to better health on a fast track.
Thursday, July 22, 2010
Kooky Kash is one kool Kooky. She had always rose to the occassion under all battle conditions. I must add she is very infantry. She too passed her competency test in this crisis. Kooky had called me to say that she had O+ blood group set and will be ready to donate her blood for Ibrahim. Thanks Kooky. I am glad to have you as my partner in any situation. You rock.
Back on the normal front Kooky and I had planned to dispatch some nutrients and stuff to Ibrahim in HKT. Kooky is really resourceful and can make things happen at the drop of the hat. She will purchase the nutrients from Nestle at staff price. That should give us some super savings as the nutrients I believe, are super expensive. She will also make the arangements to dispatch the package by courier service soonest. Her talents in logistics will make most of us awe. Kooky is a 'solutions person' as she will have solutions in her pocket for any occassion.
It is 3 days now since Ibrahim was transferred to HKT. He seems to be reasonably stable as he has started to eat piza on his own. He had many visitations and his father is happy.
Ibrahim's blood content is still so unpredictable. Just got a call from Mazlan. Ibrahim's red blood count moved up to 9 points as suppose to a normal range of 4.0 to 5.6. In cases of leukemia where rouge white blood cells grow at a tremendous pace, these bad white cells will soon take up more space in the blood stream. Hence red cells will be curtailed perilously low.Very very dangerously low. It may result to brain damage if the brains does not get enough oxygen via red blood cells. I am not sure why HKT's blood bank may not have enough type AO positive for Ibrahim.
I have told Mazlan to go to the nearest army camp in KT to source for emergency blood. He is to use my name. The duty officer of the regiment will call me up for authentications.
While all this emergency briefing to Mazlan is going on my mobile interrupted me.
God is great. Please, please, believe me for this time only. It cannot be anybody but God getting an army lady officer from MINDEF to call me if I would like to attend any regimental functions during our Corps birthday this weekend. Again I was saved by the bell, as I was also franticly trying to get somebody in MINDEF at the same moment. I instructed the lady officer to contact the Malay Regiment stationed in Kuala Trengannu to round up blood donors. Once contact is made, the rest is SOP. (Standard Operating Procedures.)
Thank you lady officer and I still do not know your name. I'll find out to thank you later. You have just saved our Ibrahim's life. I can sense your confusion. You took your instructions well from and old officer whom you had not met before, but only know my name. God sent you to me.
Ibrahim you hang on. Blood and more Piza is on the way.
Agi Idup Agi Ngelaban
Wednesday, July 21, 2010
Sunday, July 18, 2010
This is the winning smile we wanted to create. Ibrahim will be off the terminal list soon.
Following Ibrahim's recent relapse, he was in a critical stage and was admitted once again into HUKM at 4.00 am Friday morning. Before he could fully recover from his treatments for his testicles. Cancer had attacked all over his bones and joints. Doctors oncall had categorised him as too week to be administered for anything else other than morphine, morphine and more morphine. Later in the day Ibrahim was able to be dripped with saline, minerals, and blood transfusions. It was ER all the way.
Then the specialist came around, but then they still could not proceed with the dreaded chemos. Ibrahim must be stabilised first. Calls were made to HKL's national central blood bank for more blood transfusions. No more can be done for Ibrahim, who was now sedated in morphine and was in a state of delusion. Ibrahim was placed for palliative treatments and administration. Meaning relieving pain or alleviating a problem without dealing with the underlying cause, cancer.
Ibrahim's father, Encik Mazlan was in a state of total shock. He never thought of calling me or anybody when Ibrahim was admitted to the hospital. The doctors had told him that Ibrahim was a terminal case. He may take him home if he wants to. Who wouldn't be shocked by such cold but insensitive prognosis?
Encik Mazlan eventually called me the next day, Saturday. He had tried to explain the situation to me, in all jumbled facts. I rushed immediately to see Ibrahim in the Pediatric Wad to find him really done in, and in a the worst condition I had ever seen him. His mother, siblings and an uncle and auntie were already there. All "tunggu masa". I managed to extract out the bit and pieces from Encik Mazlan. I pleaded with the nurses on duty for me to see Ibrahim's daily report cards to no avail. Confidential and I am not authorised access. The IV nodes, oxygen, drips hanging down and Ibrahim being wired up spoke for itself.
I was fortunate that the doctor on call did his rounds early in the evening. I caught him at the reception desk and he was good enough to spend some time with me. We discussed Ibrahim's condition in detail. He was very sympathetic and clear in his discussions. The hospital could not do anything more than palliative treatments. Ibrahim must recover on his own. I won't pen the doctor's stand on Ibrahim's chances of survival. I can't. I have faith in Ibrahim. He has fighting qualities. He had looked forward to my visit. His eyes told me that he was alright.
I then bargained with the doctor. Would Ibrahim be better off in the hospital or go home? He was caught off guard and said of course he will be better looked after in the hospital, nurses, equipment, ICU etc etc. Ok then, thank you doctor, Ibrahim is staying and not going home to tunggu. Please state Ibrahim's requirement for continuous palliative treatments in the hospital. I wouldn't have anything otherwise and I speak on behalf of the father. Please send an urgent note to the departments' nutritionist. Spare nothing. Ibrahim will fight and we will all fight for him.
Kooky and I had planned to visit Ibrahim this evening. Kooky had done a wonderful job sounding the alarm bell. She had created a tsunami of responses in her networks. She had managed to collect RM3266.00 for Ibrahim's fund todate. AND, she had said she expects more to come. Kooky was so upbeat that she SMSed me as the collections increased each time, minute to minute like bookies did in last football world cup. Relax Kookie my first joke on you. Allen Lai is in the best mood today.
On top of the contributions, there were calls for coordination of visitations. All hands were on deck. Agi Idup Agi Ngelaban (If there is Life there is still fight). I was amazed that everybody wanted to do something. Thanks guys, we are team. Kooky and I finally agreed only to invite Nurina (a triathlete and nurse by profession) to come along. Thanks May Senn for cueing Nurina early. We had discussed and shortlisted the emergency foods for Ibrahim. From Nestle's to Appleton's to..... We will ensure Ibrahim will get the best food. Thank you for you generous contributions and well wishes.
The most heart warming thing to see during our visit was to see kids with kids. Kooky's children Nady and Citra had tagged along. Nady wanted to give Ibrahim his personal favourite Transformers toy. Nady was taught that if he wanted to give something to somebody, he must give his most favourite toy. He had no reservation, no regrets and no boundaries like his wonderful mom. Nady rocks. An unconditional bond was made on the onset. Nurina and Citra had also given him a soft toy each.
We know that children in the terminal list are often given their last wish. The therapy is aged old and serves the purpose of making the child happy so that they forget their pain and sufferings. This indirectly will make their bodies want to fight to live for another day. I promised to take Ibrahim for my bike rides with PCM and runnings with Pacesetters when he is well. I promised to buy him a bike when he can ride one day. The day will come. I promise.
Together we will not loose Ibrahim, not without a fight. Agi Idup Adi Ngelaban.
Kooky is causing a tsumami. It is a rave now. She informed me today that PCM will be riding for Ibrahim on Friday night 30 July 2010, holy month notwithstanding.
I am lost for words to see the how the speed and responses for call ups are zapping in the networks. Blogs, websites, comments, Face books, Tweets, SMSs and mobiles. Land lines not verified yet. Runners, cyclist and triathletes are now responding with lightning speed and near the to the speed of light. Believe me, I am really old school. Thank you all.
PCM is Putrajaya Critical Mass. Families come in doves to Putrajaya every last Friday of the Month for a social ride on their bicycles around the city lights. I have been riding safety warden for the evening and every body knows me as Uncle Allen as I would be lighted up like a Christmas Tree, always there at main road junctions controlling traffic.
If you have a bike, do come and join us. It is fun.
For more information please visit :
Call me @ 013 3948839 anytime to directions to Putrajaya.
Friday, July 16, 2010
Thursday, July 15, 2010
Of Cats and Cancer is a good blog for ladies who have breast cancers and of course anyone who loves cats. I am particularly interested in her post describing her exercises in Guo-Lin Qi Gong. See her post here.
I wish to thank Puan Azmi Talib for leaving this blogsite behind for us to read and I wish her best of health. God bless her.
In my relatively short time of 11 months since detecting cancerous cells in my prostrate gland to my excellent prognosis today, I applied myself to the problem to be solved. I do not know anything about cancer, save that my relatives and friends had cancers and that they are going to be cured by specialist. How wrong I was. When I first met my Oncologist, he had tried to explain everything to me. I am convinced that he is the specialist and that he could fix me up. So I said with full confidence “ Doc, you are in charged. Fix me up”
Monday, July 12, 2010
Sunday, July 11, 2010
To know more about MAKNA visit its website at http://www.makna.org.my/aboutmakna.asp
Tuesday, July 6, 2010
I’ll strategize my plan on Feel good, feeling good. When Kooky crossed the finishing line for the Ultramarathon in 14 and a half hours, she felt good as anybody would feel the same goodness. But that was not all, she had felt a higher level of goodness. Yes she must have in part felt good because of completing her race well and had achieved what she had set out to do. But most of all she had felt a higher level good because she had achieved a higher objective. Project 84; she had run for Autism, no boundaries.
When I wrote my first post (see below) on what I did to help young Ibrahim, I had many calls and prayers extended for Ibrahim. All had sympathized and had prayed for Ibrahim’s full recovery. To those who had prayed, I am God’s answer to their prayers. God had dispatched me to help Ibrahim for you. If this is too much for you to grasp, never mind. You can understand if you give it some thought at your next prayer time. Meantime you can still help. Do a Kooky. Run with Ibrahim in next year’s KL marathon. Get the higher level of Feel Good that Kooky felt when she crossed the finish line to touch the lives of those with Autism. It is different. This feeling good cannot be shared, it is very personal. Ask Kooky.
I will be talking to Kooky on my concept and plan on how to go about this project. The plan will essentially entail an immediate small collection of funds/ donation in kind, to source anti cancer food for Ibrahim so that he can get off the wheel chair ASAP. The next step would be to get Ibrahim stronger so that he can start physiotherapy and preparation for the event. Ibrahim’s father, his doctors and I will monitor his progress. I believe with all our immediate contributions and help, Ibrahim should be ready to begin his initial training for his event in 2011. I will post his progress reports in this blog.
Register with us now, no limits to the number of helpers or runners.
Contact me by email at firstname.lastname@example.org,Kooky@Run Kooky Run or Julie @missjewelz to register your interest to chip in to help out. Let us make a difference for Ibrahim. I am his hope, you are our hope.
Yesterday I managed to catch up with Kooky to pass on the contributions I had collected on your behalf for her project 84. Kooky had successfully completed her 84 km maiden Ultra -marathon in Singapore and in earning her pledge to Run for Autism.Syabas and kudos to you Kooky. It was not an easy feat that you had accomplished. Many people could not even run a full kilometer, much less an Ultra-marathon. Your 14 and a half hours timing at the finish line for a first timer was testimony to your true grit and determination. We congratulate and salute you for your Project 84, which had no boundaries in the human spirit. Kooky had displayed leadership at its best.
I sincerely wish to thank all my family members and close friends who had generously contributed to this noble cause. I apologize for the poor planning and short notice that I had sent out seeking for your contributions and help. You all had responded almost immediately and had stood up to be counted. You had mattered, and Kooky had said to me that every Sen counts. Kooky and I are very proud of you all and wish to say a big thank you.
Read Kooky’s race report here.
Thank you Kooky for your leadership and wishing to help me out in undertaking to help young Ibrahim who is down with leukemia. No I won’t allow Kooky to take on the blunt end for Ibrahim. Allow me to emulate her fine efforts. It is my personal pledge this time. It is my fight to help a fellow cancer patient. I had achieved my first and immediate objective to source essential filtered water for Ibrahim. Thanks to Dato Dr. Noordin Darus and Worldwellness Sdn Bhd. I still have my long term objective to achieve, and that is to source funds for Ibrahim to have a bone marrow / stem cell transplant.
I had earlier in the hospital asked Ibrahim if he would like to join me in running marathons. He had answered “Nak, tetapi susah ku lari”. I cheered Ibrahim up and assured him that he will get well soon and will be able to run with me and my friends. We jomed. I had then discussed with my daughter May Senn that we’ll run for Ibrahim in the coming KL Marathon. We’ll take turns in a relay to push Ibrahim in his wheel chair. She will find volunteers to help out. This will make Ibrahim’s dream come true, as Ibrahim’s father had told me that Ibrahim had never ever ran in school activities before. But running in the coming KL marathon was not to be, as we did not have the time to prepare for Ibrahim’s run. And also Ibrahim and I had just completed our punishing radiotherapy sessions. We needed at least 3 weeks to recover from its side effects.
Learning from Kooky’s courage and cue to undertake in helping others, I think I can do a bit more for Ibrahim. I envisioned Ibrahim to be running with us next year. It is a doable objective. Dato’ Dr. Noordin had already assured clean and filtered water for Ibrahim, all Ibrahim needs now is a balanced anti cancer diet to help him to be cancer free. Proper selected food intake will bring Ibrahim on his feet again. Proper food will ensure remission in his cancer and it will also ensure that he will never have another relapse again. And with God’s help he may never need to have a bone marrow / step cell transplant.
I have adequate readings into anti cancer diets. I am confident proper food will cure cancer patients. My personal additional food bill is about another RM400.00 - RM500.00 per month. Given that we have to eat lots of fruits, cruciform vegetables, seaweeds, torfu and soys, low GI (Glycemic Index) lentils and pulses, berries, herbs and of course wholegrain rice and cereals on a daily basis. We also have to take a bit of supplements in vitamin C, Vitamin D (Free from sunlight) and Vitamin E. It is essential that leukemia patients impose rigid glycemic controls. All said, I envisage Ibrahim would need a budget of about RM300.00 per month for the next one or two years. This amounts to RM3600.00 per year.
Please help me to get Ibrahim to run with us next year. It is a doable objective. You can pledge a small contribution towards Ibrahim’s anti cancer food need. If you are in a tight corner yourself, please pass my request for help to your friends who can chip You can call me anytime at 013-3948839 or use my email@example.com to contact me. I appreciate if you can inform me of your contributions for me to keep track.
Thank you for touching young Ibrahim’s life. Let’s get together and make Ibrahim well again. It's a doable with your help.
The power of human spirit is an awesome experience. Many people would have experienced it sometime in their lifetime. I just did.
I always had a high quotient of EQ and compassion in me and I had applied myself well in a general way. When I became a victim of a life threatening disease, my quotients raised to another notch higher, particularly for those who were less fortunate than me in coping with our medical predicament.
I was doing my daily radiotherapy sessions in PPUKM Cheras (HUKM) when I met Ibrahim accompanied by his father Encik Mazlan. Ibrahim was sick, undernourished, frail and wheel chaired. Ibrahim had the classic profile of a very sick child suffering from Leukemia. Needless to say Encik Mazlan had looked even worse off. He had the profile of a very lost father. Lost for words, lost in his thoughts, lost in his esteem and lost for hope. Encik Mazlan had lost hope for his son Ibrahim because Ibrahim in a span of several years had three relapses of cancer cells lodgment in the brain, spine and now testicles. Chemo and radiotherapies are not working well for Ibrahim. How many cancer relapses can a person take? How many cancer relapses can a frail child take? It is more often that chemo and radiation side effects would kill the patient well before cancer does. Encik Mazlan understood that.
It took two days for me to break through to Encik Mazlan. The first two days were always exchanges of a polite weak smile and “Selamat Pagi, ada baik ?”. Encik Mazlan would then shut down into his though, sitting by himself; Ibrahim waiting for the nurse to call his name for his turn in the daily long queue. From the third day onwards I had learnt more of Ibrahim’s medical conditions and the team of Oncologist’s fight to stabilize his Leukemia. PPUKM is a teaching hospital and a Specialist Centre. Ibrahim’s Oncologists are Professors and teaching staff. All doctors were on overdrive to make Ibrahim well. But there are always constraints in life. Encik Mazlan works as a billing clerk in a local TELCO company. He does not get government support and rates for hospital treatments. However Encik Mazlan is able to cover his son’s treatment under his company’s basic standard insurance scheme for lower staff members. Bone marrow and cell stem transplants are out of the question.
Over the week I had gained more confidence from Encik Mazlan and I was also able to put Ibrahim in a happy mood every morning by letting him play the games I had downloaded into my iPhone. In the course of our daily conversations, Encik Mazlan had told me something interesting. There was a full year that Ibrahim was well and his quarterly medical examinations and reports showed good markers. That was the year that Encik Mazlan’s neighbour had helped Ibrahim. He had provided filtered water for Ibrahim to drink daily from his new water filter system. All was well until Encik Mazlan had to relocate from his home in Kelana Jaya, PJ to Rawang for economic reasons. Ibrahim did not have any more opportunity drink filtered water since then, as the neighbour’s filtered water system cost about RM2500.00, with yearly maintenance cost to change the filters. Encik Mazlan could not afford it. Then Ibrahim’s cancer relapses came in one after another unabated.
I told Encik Mazlan, that he should provide the same filtered water for Ibrahim to drink daily no matter what it cost. Ibrahim was OK when drinking the filtered water. We had found out that his neighbour was using the RX WATER filter system from Worldwellness Network Sdn Bhd. A local provider in wellness products founded by Dato’ Dr. Noordin Darus.
I had suggested to Encik Mazlan to take a loan or an advance salary from his company to purchase RX water system. But he could not get his request granted for a small company loan nor advance salary. I told Encik Mazlan not to worry not to despair, I will think of something. I will think of a two stage plan for Ibrahim. Firstly is to get the RX water system immediately for Ibrahim and on a longer planning term, to source support for a Bone Marrow transplant.
I was troubled and worried but did not panic. What if I could not deliver my promise to help Ibrahim? I prayed for guidance and clarity of thoughts. I was no longer thinking of my own prevailing medical problems. My only thoughts were on how to help Ibrahim. I shared my thoughts with my wife and my daughter May Senn. I am Encik Mazlan’s HOPE. I must not fail him and Ibrahim. I must not.
I researched relentlessly in the internet into Leukemia and more into Worldwellness Network Sdn Bhd. I must contact Dato Dr. Noordin Darus. I know help is out there. But how do I talk to the company? More so, what do I talk about to the company? I called the company and requested for an appointment with Dato. The next day I had an appointment with his marketing staff who gave me the best returned call I had ever received in my mobile. Dato’ would see me, Encik Mazlan and Ibrahim on Tuesday 8 June at 11.00am.
My prayers were answered when the good Dato agreed to take on Ibrahim under hisDanaWellness programme. Dato gave instruction to his staff to issue a new set of RX WATER filter system, prescription for RX salt and RX Tra to Encik Mazlan. Dato also took time to explain to us his approach to cure Ibrahim. He will see to Ibrahim on a monthly basis. What more do we want? Dato Dr Noordin is God sent to help Ibrahim. We have achieved our first stage with God’s grace.
I have gained this inert power of human spirit in me. I have it, in part because of my upbringing and the close family bondage that I cherished; thanks to my parents. In part also due to my long career in the Army. But in a great part, it is due good friends and commanderie with my running friends in Pacesetters Malaysia. They are the most selfless souls I know. After all running marathons is very akin to the human spirit. The sweat, endurance for pain and the sheer determination says it all.